Though I was initially reluctant to start a Xanga blog 2+ years ago when "everybody" was doing it, I confess that I’m disappointed to hardly "hear" from people anymore. I guess Facebook is the network of choice, though for various reasons I don’t spend much time on there, and therefore miss out on the vignettes. I miss you all!
I’m sorry it’s been so long since posting regarding our Cincinnati trip! In summary, it was a very blessed, enriching time. We made a mini-vacation out of it, since our fears were allayed, and the doctors and nurses were incredibly warm and kind. We also had a great time of fellowship with friends over the weekend. I write memories now so I do not forget. Read or skim, as you wish; this is a long one! J
We met with Dr. Lisa Young at the Cincinnati Children’s Hospital for the first time on Friday. She came out to the lobby looking for us as we registered, as though she had nothing else to do but take care of us that morning, though we also had to meet with a nutritionist and the social worker. As the morning grew late, we realized that time was growing short before we needed to check out of the hotel. Rather than simply find the number and hand us the phone, she dialed the number herself and informed the desk clerk with quiet authority that she needed to spend a little more time with our family and would they please grant another hour or so. Wow!
The hospital gave us passes to the zoo, which was located only a few blocks away. It was COLD but sunny, so although many of the animals we wanted to see were not available, we had a good time. On Saturday we went to the Creation Museum, and though we did not have time to experience everything, we appreciated the quality of their presentation of Scripture and science.
At the zoo:
At the Creation Museum:
We enjoyed the hospitality of the Woodmans over the weekend, especially worshipping with them on Sunday. Henry talked about Josiah and Janaya for a long time afterwards!
Sunday evening we went back to the hotel close to the hospital where we kept Henry up until midnight watching football (not a regular practice in our family, but convenient that he enjoys it since we needed him to be very tired on Monday morning for the PFT). Then we woke at 5:30 am when I fed him one more time, and then we had to keep him awake until the procedure. We were all tired, but the doctors were thrilled to see Henry getting cranky at the right time, meaning that he was ready to be sedated and sleep deeply. Thankfully they had seen him at his charming best on Friday, and promised not to judge our parenting by his attitude on Monday. J
The PFT (pulmonary function test) went well. I couldn’t nurse Henry again beforehand as he wished, but gave him the sedative myself, and Michael and I sang him to sleep. It didn’t take long, but it was hard for a tired Mommy to watch her baby being positioned wearing the vest in the machine that would gauge his lung capacity. Henry slept so well, in answer to the many prayers that were offered up on our behalf. Michael and I finally went and got a late breakfast, then returned to continue observing.
The results were satisfactory and that Dr. Young confirmed her diagnosis of NEHI with no need for a lung biopsy. Praise the Lord! It took Henry a while to rouse sufficiently so they would release us to go home, but we finally got on the road. We only drove a couple hours before stopping at a hotel for the night, so our return was truly refreshing. We did stop in Blacksburg for TCBY, and a visit to Michael’s favorite bakery from his college days.
So, life with NEHI has not been too overwhelming thus far. Henry’s appetite has improved, and so has his weight. I have to sneak butter on his bread, and he is finally learning to enjoy ice cream (!), but we’re finding ways to encourage him to eat pretty well. His progress is being monitored by the pulmonologist in Roanoke.
BTW, my family will be amused to know that Henry is developing the habits of a chocolate nibbler, just like his Mama. He can make three 60% Ghiradelli chocolate chips last quite a long time (leaving significant evidence on his face and hands).
Henry turned two last month and continues to astonish us with his vocabulary, much to our amusement. Let me encourage you young mothers, to SATURATE your children with Scripture and doctrine long before you think they are paying attention! Right now he’s soaking up hymns. Yesterday he was singing "It is well, it is well with my soul" as we strolled to the mailbox. He frequently requests stories about Jesus, David and Goliath, God calling Samuel, etc. Our breakfasttime Scripture reading together has become precious (Hebrews 13:16 is a very useful verse at this age!).
And Henry is already developing a taste for tea (and lattes), just like Daddy and Mommy. Recently I made myself a latte to enjoy while reading my Bible. Henry wanted one too, so I gave him a little and added extra milk. Then he wanted the tiger (a gift from the Children’s Hospital) to have a latte too, so I found another cup. Here we are having morning lattes:
And he is all-boy. Acquiring age-appropriate tools became a necessity after such experiences as these:
After a brief trial of concern for our unborn little one, due to two "soft markers" for Down Syndrome that showed up in the ultrasound, the Lord again strengthened us through the prayers of His people and the promises in His word, and granted us relief with the follow-up quad screening results that indicated little likelihood for Downs or other similar conditions. Praise be to Him alone! I am relieved because I really wanted to deliver with the help of the midwives at the hospital in Lynchburg again, and so it appears that having neonatal surgeons on hand will not be essential. Our whole family enjoys the activity of this precious gift, bouncing around in my womb! Henry has promised to share his dump trucks and screwdrivers with his little sister (we don’t know if we’re having a boy or a girl), and loves to talk to the baby and kiss my growing belly.
We are encouraged with the growth of the church plant in our area, led by one of our dear pastors, and joined by several families from our church and another Roanoke church, plus "lake" families who are hungering for greater depth in preaching. We have outgrown the space in the library and are moving to a new temporary location while the elders continue to search for something more permanent so we can start meeting both mornings and evenings, hopefully in the near future. My heart aches to think of leaving so many sweet friends behind, but what is this life compared to eternity, where we will all worship together again?!
Henry will probably wake up soon, and I need to finish up some things before then so we can have teatime together.
Hosea 6:3